The first day of Cilia2022 is geared to allow active exchange between patient groups and researchers. We will start with a patient-scientist satellite meeting in a very interactive format. Short statements from a panel of leading cilia researchers and clinicians will be followed by a ‘World Café’ format discussion. This involves small tables of patients, their families, and support groups mixing with researchers to engage in in-depth dialogue. Later that day, there will be a general patient-scientist exchange session. After our keynote lecture, a welcome reception will bring together both scientists and patients, while we will have a unique science poster exhibition for patients and families.